Ben

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Watching and waiting

Tuesday, January 13th, 2009

On Saturday, it was my immense honor and privilege to take part in little Ben’s memorial service in Seattle. The entire service was perfect – every aspect, every detail, was so Ben – from the “Finding Nemo” medley played by the small ensemble, to the many references to the movie “Cars,” to his Aunt Kristen’s fabulous purple heels (Ben’s favorite color). The sight of his gorgeous face on the front of the program literally stole my breath – this was a stunning, remarkable child.

How did it come to this?

Sitting in the front row during the service, I could feel the wave of grief from the thousands of people behind me – the sorrow was palpable, thick. And as I stood onstage alongside my beautiful friends Catherine, Sue, and Robyn to sing, I saw the brokenness in the faces of the community, of the family, of Jeff and Carin. So many had hoped, so many had prayed, so many had pleaded with God to be merciful.

What do we do with our unanswered prayers?

It would be impossible for any child to be loved more than Ben, I am sure of it. And in his absence, there is a void, an ache, a sense that nothing will ever be right again.

Then I saw a new heaven and a new earth, for the first heaven and the first earth had passed away, and there was no longer any sea. I saw the Holy City, the new Jerusalem, coming down out of heaven from God, prepared as a bride beautifully dressed for her husband. And I heard a loud voice from the throne saying, “Now the dwelling of God is with men, and he will live with them. They will be his people, and God himself will be with them and be their God. He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away.” He who was seated on the throne said, “I am making everything new!” Then he said, “Write this down, for these words are trustworthy and true. -Revelation 21:1-5

Come, Lord Jesus, come.

Broken

Friday, January 2nd, 2009

This morning in our new house, because of a miserable failure on my part, we awoke to no heat and no hot water. We have spent the past 2 weeks with no internet, and since I left my phone charger in Kansas City after Christmas, I’ve been limping through with no real phone access. My closet doors fell off the tracks. My Chi hair straightener has mysteriously stopped working. I had a flat tire on Sunday night, and when I called AAA for help, was informed that my service had expired. To top it all off, the first time that Mel used the mug I gave her as a housewarming “happy to be roommates!” gift, the coffee flooded out through a crack in the bottom.

A lot of things in my life are broken. But none more so than my heart.

Little Ben’s broken body was taken from this broken world on Tuesday. And there are simply no words to express the grief, the anguish, the suffering of his family and community. It’s the most devastating tragedy I have ever experienced.

God is good. But life’s a bitch.

Sorrow

Tuesday, November 4th, 2008

Keeping vigil with the Townes today. There are no words.

I am clinging to the truth that no matter how deep our sorrow, God’s love is deeper still. And I’ve heard it said that grace always flows downhill: pooling in the deepest, darkest places of our pain. May the Townes feel that inexpressible peace that passes all understanding.

And may Ben smile his pure-sunshine smile, the one that is so much like his mom’s.

O is for Our Father

Monday, November 3rd, 2008

When your spirit feels stripped, when your foundation is rocked, when you watch your friend’s lives being torn in half like a giant bed sheet, you begin to wonder about this God – the one that you have never not known, the one that you have sung about since you can remember, the one that you have prayed to as naturally as breathing. And when the doubts and questions and anger start creeping in, it’s hard to think straight. It’s hard to remember what you know to be true. It’s hard to believe.

Over the past few days, I have seen everything – everything – through the lens of Ben Towne. Every conversation, every observation, every thought and attempt at prayer – everything has been colored by this bulldozer called cancer. How are we supposed to pray? What are we supposed to ask for? What is really true? What do I believe?

And in this dark and rocky time, I have fallen back on one prayer – the only prayer that I currently know to pray, the one that I’ve never had to memorize because I’ve always known it.

Our Father, who art in heaven, hallowed be Thy name.
Thy kingdom come, Thy will be done on earth as it is in heaven.
Give us this day our daily bread,
And forgive us our trespasses as we forgive those who trespass against us.
And lead us not into temptation, but deliver us from evil,
For Thine is the kingdom, and the power, and the glory forever. Amen.

Over and over, like a mantra, this prayer has been pumping through my veins. This is a prayer straight from Jesus’ lips – the way that he taught us to pray – and at this point, it’s the only thing I know. As my friends are living their absolute worst nightmare, I am offering this prayer with every breath.

Thy will be done. But also, deliver us from evil.

I am praying for both. And I don’t know what else to pray for – except for time. As much time as God will give them.

I believe that God is love. I believe that this world is broken. I believe that we were not made for pain and death – and that’s why it hurts so badly. I believe that there will come a day when creation is restored and renewed and redeemed. I believe that, in the grand scheme of eternity, our lives are a flash in the pan. I believe that to be absent from the body is to be present with the Lord. And I believe that God loves Ben, and God loves the Towne family, and that he sees them and has not abandoned them, and that none of this is a mystery to him. I have to believe that.

Ben

Friday, October 31st, 2008

In July of 2007, I took a ferry from Seattle across the water to Bainbridge Island, and drove to the beach where I met one of my best friends, Carin, and her 2-year old son Ben. We walked along the water, and threw rocks into the waves, and looked for little sand crabs, and ate grapes and crackers, and soaked up the glorious summer sunshine. Ben was running, and climbing, and laughing. It was a perfect day.

Looking back on that afternoon, our ignorance is obvious – blatantly flashing like a neon sign, humming with a warning we could not hear – as no one could have ever expected what was to come. For a few short weeks later, Ben was diagnosed with an aggressive, high-risk form of cancer called neuroblastoma. And since that day, Ben and his family have walked through nothing short of hell on earth.

While thousands have prayed, Ben has endured surgery, chemotherapy, radiation, stem cell transplants, oral drugs, experimental antibodies – not to mention excruciating pain, vomiting, and the side effects of atrociously harsh narcotics. Jeff and Carin have watched their baby writhe in pain, with no power to do anything about it, or to explain to him “why.” They have continually trusted their son’s safety, health, and comfort to the doctors and nurses – all the while living in fear of what the final outcome might be.

Last night brought some unspeakably heartbreaking news. Ben has four new tumors – three on his brain, and one on his liver. Despite every effort over the past 14 months, the cancer is spreading.

News like this is like… a fistful of broken glass. A fish-hook in the side. An anvil on the chest. And it takes me to a very raw and ugly place – one in which I doubt prayer, and I doubt God. It’s not fair. It’s just not fair. He’s just a little boy – barely 3-years old. He should be trick-or-treating tonight. I cannot stand it. Is there anything worse – anything more senseless – than the suffering of a child?

When Ben was baptized as an infant, his mom, beautiful Carin, stood in front of our church congregation and read the scripture that they were claiming for his life: “I am convinced that neither death, nor life, nor angels, nor principalities, nor things present, nor things to come, nor powers, nor height, nor depth, nor any other created thing, will be able to separate us from the love of God, which is in Christ Jesus our Lord” (Romans 8:38-39). Who knew that Ben would actually be faced with all of these things within the first 3 years of his life. Now I am clinging to the promise that none of these horrors can separate him from the love of God… but where is this love?

I know I’ve asked for this before, but please join me in praying for Ben, his parents Jeff and Carin, and his little brother Ryan.

“In one phone call we were gutted.”

Tuesday, April 29th, 2008

The rising price of gas. The increased cost of a gallon of milk. The housing market. Clinton versus Obama. Miley Cyrus’ latest scandal.

Today, none of that matters.

Please pray for my dear friends Jeff and Carin, and their sweet little boy Ben.