Zion

...now browsing by category

 

Don’t Give Up Zion

Friday, June 20th, 2014

My sweet nephew Zion, the ultimate miracle baby (besides Jesus), is now 3-years old. He is humongous and gorgeous and funny and emotional and snuggly (except when he doesn’t want to be snuggly) – and if you’re interested in learning more about this precious boy, you should peruse my brother and sister-in-law’s family blog. For as great of pictures as they take professionally, they are both darn good writers, too.

Zion has been officially diagnosed with cerebral palsy, and Jeremy and Ashley are fighting to get him placed in a school that will be the best fit for his needs. This is an expensive process, and some of their friends have started a fundraiser site for them. I know that all Parsons people feel weird and uncomfortable asking for help, so please know that this isn’t a demand or an expectation or anything. But I know that so many of you have followed Zion’s story since 2011, and have expressed so much care for this little boy – so I wanted to make you aware of this need, in case you want to pitch in.

DGU_Zion

If you need to have your heartstrings pulled on a bit, just watch this.

What I made on Sunday

Tuesday, August 23rd, 2011

Today

Thursday, August 4th, 2011

I am climbing Mt. Princeton.

And baby Zion is breathing on his own.

That’s basically all I could ask for on my 29th birthday.

I am super grateful to have made it through the past 12 very difficult months, and summoning as much hope as I can for the year ahead.

Sweet baby Z

Wednesday, August 3rd, 2011

Sweet baby Zion is hanging on and hanging in there.  His condition has shifted so many times and so quickly, it’s hard to know what to say – and I don’t want to say one thing, only to have it change in the next minute.  So watch Jeremy and Ashley’s blog for more “official” news.

What I can tell you is that Zion had surgery yesterday afternoon to have a shunt placed in his brain to drain off fluid – fluid that had been building up and restricting brain growth, fluid that had caused his original crash on Saturday night.  The surgery went well, but as of right now, he is still intubated – a much longer intubation than would have been ideal.  We are hopeful that he will be extubated this morning, because he is uncomfortable and in a lot of pain.

Jeremy and Ashley haven’t left his side, and have the impossibly hard job of entrusting their baby to strangers.  They are low on sleep and high on stress, with every beep of the monitors making them sit up and take notice.  Being a parent requires one’s entire heart – and Zion has theirs. They have been amazing.

In the meantime, and until further notice, I’m in Colorado Springs hanging out with my little chipmunks.

Thank you for your prayers and thoughts and texts and emails. This beautiful, tiny baby is so loved, and we continue to entrust him to the One who made him.

Change of plans

Monday, August 1st, 2011

I’m on vacation this week, but my plans – however tentative – have been scrapped.

Baby Zion arrived in Colorado Springs with his family (my brother and sister-in-law and two older nephews) on Saturday, and within an hour, was rushed to the ER because he wasn’t breathing. He almost died that night. Now he is in the ICU, with no real timeline or definitive prognosis.

Please keep my littlest nephew in your prayers.